What is psychosis?
This page explains what psychosis is and its possible causes and treatments. You will find it useful if you are affected by psychosis or if you have a friend or family member who is affected.
- Psychosis is a medical term used to describe hearing or seeing things that do not exist, or believing things that other people do not.
- Common examples include hearing voices or believing that people are trying to do you harm.
- You can experience psychosis for a wide variety of reasons. For example it can be due to having a mental illness such as schizophrenia or bipolar disorder. It may be caused by drug use, brain injury or extreme stress.
- There is no one single cause of psychosis but researchers believe that genes, biological factors and environment may play a part.
- In the NHS, you should be offered medication and talking therapy to help with your symptoms.
- To access treatment for psychosis, you usually need to have an assessment by specialist mental health services, such as the Community Mental Health Team (CMHT).
- If you are experiencing very severe psychotic symptoms, you may need more urgent help such as going into hospital.
- There are different perspectives on how we should deal with psychosis. This includes listening to the voices or trying to understand the meaning of the unusual beliefs.
Psychosis is a medical term. It describes symptoms people have when they experience, believe or view things around them differently to other people. Some people don’t find it helpful to think about psychosis a mental illness.
If you have psychosis, you might see or hear things that others may not, or believe things other people do not. Some people describe it as a "break from reality". You may also hear terms such as “psychotic symptoms”, “psychotic episode” or “psychotic experience” describing the same thing.
In mental health care, these experiences are viewed as symptoms of mental illness. A report from the British Psychological Society has said that the use of experiences is more neutral than the term symptoms. We will use experience in order to ensure this page relates to everyone who reads it. As this report points out it can be difficult to discuss medical terms in a psychological way. Because of this there may be some overlap between medical and neutral terminology throughout this page.
If someone has psychosis they may not be aware of this and believe their experiences are real. About 1 in every 100 people will experience a psychotic episode in their lifetime.
Typical examples of psychosis include the following.
These are when you see, hear or feel things which are not actually there. For example:
- hearing voices,
- seeing things which other people do not see,
- feeling someone touching you who is not there, or
- smelling things which other people cannot.
These are beliefs that are not true and may seem irrational to others. For example you may believe:
- that you are being followed by secret agents or members of the public,
- that people are out to get you or trying to kill you. This can be strangers or family members,
- that something has been planted in your brain to monitor your thoughts, or
- you have special powers, are on a special mission or in some cases that you are a God.
You may not always find these experience distressing, although people do. You can stay in work and function at a high level in your life even if you have these experiences.
Cognitive experiences are ones that relate to mental action; such as learning, remembering and functioning.
Some cognitive experiences are associated with psychosis are:
- being unable to sustain attention,
- memory problems
- Unable to take on information
- Poor decision making
What causes psychosis?
There is no single cause of experiencing psychosis . Researchers believe genetic, biological and environmental factors all play a part.
If you have a relative with psychosis, you are more likely to experience the condition. On average, around 1 in 100 people will experience psychosis. But 15 in 100 people with a parent who has psychosis will experience psychosis. People who have two biological parents with a psychotic illness are even more likely to experience psychosis.
Scientists have found genes that play a role in experiencing psychosis, but no single gene is responsible.
Dopamine is a neurotransmitter. This is a chemical that passes information from one brain cell to another. Too much dopamine can lead to hallucinations, delusions and disorganised thinking. Scientists do not know exactly what causes the increase in dopamine in the first place. It could be due to the other factors, for example, genetics or environment.
There is some evidence that abuse or trauma in childhood can lead to experiencing psychosis at some point in your life. Research has compared people who experience psychosis with people who do not. There was a
higher than average rate of abuse in childhood in the people who experience psychosis compared to people who do not. However, many people with psychosis have not experienced abuse in childhood. Not everyone who has experienced abuse develops psychosis.
People who had complications at birth have an increased risk of developing psychotic illnesses. These complications can include, such as being born prematurely or who didn’t get enough oxygen. However, many babies who are born prematurely and have other complications at birth do not develop psychosis. People who had normal births can develop psychosis.
Using street drugs increases the risk of experiencing psychosis. However, this may depend on if you have a certain type of gene that makes you more vulnerable to these effects. Researchers think that a particular ingredient in cannabis (known as THC) can trigger psychosis. New types of cannabis, like skunk, have a lot more THC. Using drugs such as amphetamines, crystal meth or cocaine, can increase your chance of developing psychosis.
When you are stressed, your brain releases a chemical called cortisol. This can increase the risk of psychosis. Some people are more likely to develop psychotic symptoms in stressful situations than others.
Inner city living, social migration, social exclusion
You may have a greater risk of experiencing psychosis if you are born and brought up in a city than the countryside. This might be because people in cities are more likely to be isolated or use drugs.
Black people living in England have a higher risk of experiencing psychosis than white people. But black people living in Jamaica, Trinidad and Barbados are no more likely to develop psychosis than white people in England. Black people in England may be more likely to be on a low income socially excluded or isolated.
Who is at risk of experiencing psychosis?
Anyone can experience a psychotic illness. However some groups are more likely to experience psychosis than others. As mentioned above, black people are more likely to be affected than white people.
You are more likely to have a first episode of psychosis when you are younger. Men and women are affected equally, however. The average age for first experiencing psychosis is younger in men, often in their teens and early 20s. Women who develop psychosis are more likely to do so in their early 20s.
How is psychosis treated?
What treatment should I be offered?
The National Institute for Health and Care Excellence (NICE) has guidance on how the NHS should treat different health conditions. The NHS does not have to follow this guidance, but is has to take it into account. There are guidelines on:
- young people with psychosis and schizophrenia,
- adults with schizophrenia, psychosis or schizoaffective disorder
- young people and adults with bipolar disorder,
- adults with depression.
You can find all of the NICE guidelines at www.nice.org.uk.
Early intervention teams
If you have your first episode of psychosis, you should be referred to an ‘early intervention team’ for initial treatment. NICE guidance states this should be the case no matter what age you are. These specialist teams provide treatment and support. They are made up of psychiatrists, psychologists, mental health nurses, social workers and support workers. Early intervention services are run differently in different parts of the country. If there is not a service in your area, then you should have access to a crisis or home treatment team.
Some people find that they do not start to recover until they get they right medication. Medications such as Olanzapine, Repiridone and Clozapine can be important factors in recovery.
Medication called ‘antipsychotics’ can help treat symptoms of psychosis. Your doctor should give you information about antipsychotics including side effects. You and your doctor should choose the medication together.
Doctors will review your medication at least once a year.
It is important to get your medication right. Not all medications will suit you. Some will not improve your symptoms and may cause side effects. If you are on a medication that is not working, you should discuss this with the professional in charge of your care.
Cognitive Behavioural Therapy (CBT)
You should also have access to ‘talking treatments’ such as cognitive behavioural therapy (CBT). CBT can help you understand your experiences and any upsetting and worrying thoughts and beliefs. You can discuss new ways of thinking about them and dealing with them. CBT doesn’t get rid of the symptoms, but may help you cope better and make you feel less distressed.
If you have bipolar disorder and experience psychosis, your treatment may be different. Your doctor may prescribe you a different medication to stabilise your mood rather offer you an antipsychotic. Although
antipsychotics may be prescribed to stabilise your mood.
As well as specific treatment, you may also get support from mental health services through the Care Programme Approach (CPA). This usually involves having a care co-ordinator who will develop a care plan with you.
People who experience mental illness, such as schizophrenia, are at more risk of health issues. They can include being overweight, having coronary heart disease and diabetes. This may be due to your genes,
lifestyle choices, such as smoking and diet, or side effects from medication.
Because of the health risks NICE made some recommendations.
- When you start taking antipsychotic medication, you should have a full physical health check, including weight, blood pressure and other blood tests. Doctors should repeat these checks regularly.
- Health professionals should offer you a combined healthy eating and physical activity programme.
- A healthcare professional should give you help to stop smoking.
Your symptoms of treatment may affect some physical health problems.
What if I am not happy with my treatment?
If you are not happy with the treatment you then you can:
- talk to your doctor about your treatment and ask for a second opinion if you feel it would help,
- get an advocate to help you speak your doctor,
- contact Patient Advice and Liaison Service (PALS) and see whether they can help, or
- make a complaint.
There is more information about these options below:
You should talk to your doctor about your treatment first and see if you can resolve the situation with them. You can mention the NICE guidelines if you feel they are not offering you the right treatment.
If your doctor does not think of any other treatment options you could ask for a second opinion. You are not legally entitled to a second opinion but your doctor might agree to it if it would help with treatment options.
An advocate is someone who is separate from the mental health service but understands the system and your rights. They can come to a meeting with you and your doctor and make sure you get what you are entitled to.
Advocates help you make sure you are being heard. You can search online to see if there are any local advocacy services in your area or the Rethink Mental Illness Advice Service could search for you.
The Patient Advice and Liaison Service (PALS) at your NHS trust can try and help you with any problems or issues you have with an NHS service.
Different views on psychosis
Some people and cultures have different ideas about what causes mental illness. Depression and anxiety may be thought of as being caused by physical pain or discomfort. There can also be defences between the way you may view your own mental illness. You may feel that your psychotic symptoms are caused by ghosts or evil spirits for example. You may find it difficult to tell you doctor about this.
Some encourage people with psychosis to embrace their symptoms and understand their meanings. The psychologist Rufus May believes that delusions can be symptoms of deeper psychological distress which people should work through. For example, if someone feels their being is being controlled by outside forces, this might stem from feelings of lack of control in their life.
Information for carers, friends and relatives
If you think someone is experiencing psychotic symptoms you may want them to see a doctor. This can be difficult if they do not believe they are ill, this is called ‘lacking insight’.
Sometimes a person's psychotic symptoms are serious and may cause them harm. If you think someone is in a crisis you can:
- call their GP and tell them,
- call an ambulance or 999,
- use your nearest relative powers to ask for a Mental Health Act assessment, or
- take them to A&E.
As a carer, friend or family member of someone living with psychosis, you might find that you also need support. It is important to get support you want or need. You could check if there are any local support groups for carers, friends and relatives in your area.
If you feel you need more support to care for your loved one you could ask your local authority for a carer’s assessment. You can do this assessment with the person you care for or on your own.
If the person you care for is supported by a mental health team you should be involved with decisions about care planning. This can only happen if the person you care for agrees. There are laws about confidentiality that services have to follow. They cannot give you information unless the person you care agrees. The team can ask for permission from them and ask what they are happy for you or others to know. This would include any care plans. You can get the person you care for to sign a consent form to give to the mental health team. This will mean they can share information with you.