Feeling pretty alone
Posted 01 April 2012 - 11:05 PM
I just came across the website and forum and decided to post and reach out. I'm 32, got married last December to my beautiful girlfriend. She has recently told me that she has been hearing voices for the last 2 years (so onset would be 30). She told me this about 6 weeks ago. Since then things have gone from bad to worse. Things have been getting worse for her, the voices telling her to kill herself, increased paranoid behaviour and very high anxiety and depression. She has been in a local mental heath hospital for nearly a month now and she is on aripiprazole, Quetiapine, temazepam for sleep and lorazepam when she needs. I can't remember the exact doses as I'm writing this after an exhausting day. We had an brain CT scan tomorrow as she has been experiencing bad headaches. She has been very distressed today - uncontrollable sobbing and feelings of guilt for 'putting me through this'. The early intervention team are wonderful. My wife as been with me and staying at our home over the weekend, they supplied all the meds and we had to return back for obs once a day. She seemed at her wits end today, I've never seen her this distressed with the voices. They are constantly telling her that she is a bad person, that she doesnt deserve to live and that everything that has gone wrong in her life is entirely her fault.
We haven't been given a diagnosis but they seem to be treating her for Schizophrenia. Does the above situation ring home for anyone? I'm completely in the dark with mental illness, I've been fortunate to have never suffered from it nor has my immediate, blood related family. I'm doing my best to help her cope with it but I am unsure as to how to talk to her about the voices.
Any advice on the particular meds she is on, what she is going through and how I can help her would be much appreciated.
Posted 02 April 2012 - 09:51 AM
My husband is schizophrenic. It did take over two years of working with the mental health team and several assessments and stays in hospital to eventually get this diagnosis. I have now established that my husband hears three, sometimes four different voices. One of these voices says all the same things you have described your wife is experiencing... it's all his fault, he's a bad person, he doesn't deserve to live, he's destroying everyone's life. He to becomes extremely distressed with these voices at times. Sometimes they make him very angry, other times he will cry. Sometimes they drive him so mad he will start hitting his head. He often describes it as intense pain when the voices are at their worst.
So, yes some of what your saying does ring true. It sounds like you're getting really good help from the medical professionals, which is a real positive. I spent a long time battling with the mental health teams to get any real diagnosis or help for my husband. I'm sure that as soon as they have a diagnosis they will inform you, but I think it can take some time.
As for meds, my husband has been on aripiprazole on two seperate occasions. This drug really didn't work well for him. He became even more irritable with intense mood swings, and was even more angry than usual. So on both occasions I had him taken off them pretty quick. One of his current meds is quetiapine. This one seems to be working much better than any of the meds he's had in the past. Though it doesn't get rid of the voices, it does make him much more calm and relaxed, and helps him get a few hours sleep most nights. He was taking small doses of this drug throughout the day as well, but it was making him so sleepy, almost zombie like, that we stopped it. Now I just give it to him occasionally when things are really bad. I've had to give it to him today, so I should have a quieter day today... good thing too coz I'm drowning in an assignment due tomorrow. My experience with medications is that it may take several different attempts to find something that helps enough to counterbalance any side effects. I always monitor my husband carefully when he changes medications or dosage, so that I can well inform his doctors of how it's affecting him. Other than that, I put my trust in his doctors.
My husband has been suffering with this for five years now, and it's only the last few weeks I've actually managed to start talking to him about the voices. This isn't because of my husband, more down to me. Joining this forum has helped gain a better perspective and I've found it easier to talk to him. I've taken a softly, softly approach. Asking questions about what his experiencing both when he's been in the swings of an episode, and when he's been feeling ok. Sometimes he'll tell me something, other times he won't. But over the last few weeks I've managed to put together a much better picture of things, ready to tell his doctor. It's made things easier for me to, as I'm understanding it a bit better. I've started keeping a journal of the things he says, how he's feeling, what he eats, if he sleeps etc, which is proving worthwhile.
I don't know if any of this is any help. I'm afraid, as yet, I haven't really found a way to help my husband. When he's going through this nothing that I say or do makes things any easier for him, or me. I just keeping talking to the doctors and asking questions.
Hope you manage to get some of the answers you need. Take care x
Posted 02 April 2012 - 10:06 AM
Posted 02 April 2012 - 11:20 AM
Posted 02 April 2012 - 07:11 PM
When he was in hospital he found it really hard and at times seemed to get worse not better,the voices really took over at times, but once he was home with us he made much better progress.
Hope things go well with your girlfriend
Posted 22 April 2012 - 09:57 PM
Posted 23 April 2012 - 09:25 AM
They really dont look behond there nose in hospital, just mess with your meds a bit, see a consutant once a week an send you home with nothing other than a experiece in hospital sat in a chair. Loads are not ready to be home like your wife, but have nobody to help her full time in hospital so they send her home still feeling lost, maybe more so than before hospital. then they send in the crisis team ???? i would sooner stick pin.s in my eye,s than lsten to them
Posted 27 April 2012 - 05:17 PM
I hope things are ok with you and the crisis team have been able to hep in some way. Take care x