[Invisible]

Like I said before things have not been going too well for me of late, and I don't really know why, other than the build up of physical symptoms meaning that things like typing, or taking part in activities I once enjoyed are relatively impossible, but I knew that would happen.

Anyway, I have been going against my voices for a variety of reasons and reached out thinking (stupidly) that someone could help. I went into a unit for a few days and only because I begged with the crisis team in A&E but then I had to go home from the unit because they could see no reason for me staying on the ward because I was ... well who knows.

After that I have been seeing my CPN weekly and attending the hearing voices group, and even went to the ward to have a discussion when things got on top of me during the weekend and everyone gives me the same response... What can we do? This is tough, we don't know what would help in your case or things along those lines.

If I have a case that is so tricky that even trained professionals that have helped patients for a long time don't know what to do with me what hope do I really have?

Medication is useless or full of side effects.
Therapy has just finished.
Unit's well there are not any these days and you need a really good case to stay on one.
CPN is trying, but stuck.

My mental health team are stuck, and my GP is stuck when it comes to my complex physical complaints too. If everyone is stuck then should I just take that as a sign that there really is no hope for me??

[mld]

Hi invisible,

Don't give up.

Take care of yourself,

M.

[mias]

Cripes, no wonder you feel disheartened. I mean really, they should not say they are stuck but they should be more interested and keen to find out more about you and not stop until they do wrk out what is goIng on..

[Invisible]

Thank you for the replies.

My CPN knows what is going on as I pretty much tell him everything. The real issue is that I have so many diagnosis' that a treatment for one will make another one worse. As I have tried things and they have failed as well there really is not much else to try. My CPN also is trying to help with day-to-day problems by providing advice and solutions.I can see what you are saying mias but I would rather they were honest with me.

Regarding the physical issue a new GP I am seeing is running tests but everything keeps coming back negative and to be honest the tests that she can do are running out, especially as she is trying to deal with a mixture of things and as we all know doctor's appointments are only ten minutes long.

The woman's curse is not helping but to be honest it is the only reason I have not done anything today, I have always said I wouldn't do it then.

I had to pick up tablets today and it was a mixture of relief and worry, there are more that need picking up in a few days too.

Sorry rant over.

[ramboself]

with me i suspect if i was under an aftercare section of the mental health act, it wouldn't be what do you expect us to do, they'd be legally required to provide suppport or face the consequences in a court case

[toffee]

Even if you are on S117 aftercare rambo they don't really provide much support unless you take responsibility for demanding it yourself. Fact is though, its not your responsibility to demand it - it is their responsibility to provide it, but if you don't get hung up over where the fault lies you can just find out the email address of the complaints manager and send in lots of formal compalints until you have appropriate care.

Re GPs - you can request double appointments and you can book more than one double appointment a day. I suggest giving you GP the rethink leaflet on reasonable adjustments in GP surgeries. Im sorry you are going throuh such a hellish time. I spent 8 months of last year coughing so badly I could barely stand and was sometimes incontinent. My Gp thought it was my asthma and it took over 8 months before he looked at other things like GERD (acid reflux). Once he treated me for the right thing I was better within weeks so don't give up hope.

[Mau]

hi invisible just saw your post x im sorry things are not going well for you, cant find the words as usual ((((HUGS)))

[Invisible]

Thank you again for the replies.

Even though I was not under section while in the hospital when leaving my CPN, the ward psych, a crisis team member and a nurse from the ward all met with me to discuss the plan of action regarding my release from the ward...But as I said above there is nothing anyone can really offer me.

It was basically agreed that I can contact my CPN if things get worse or I feel like I need extra support, use the duty team, use the crisis team if I wish which I don't as I felt their intervention the weekend before was not satisfactory among other reasons, then as I could not use the telephone for the weekend just gone I could go to the ward go speak to someone instead of ringing up.

But my CPN has a job rather then been at my beck and call and is of course not always available and even when he is his diary is normally full for any face to face time, the duty team try but like everyone else are at a loss, crisis team well there are a number of reasons we don't get on and the ward was like pulling teeth just getting them to allow me to speak to someone.

Physical health wise I go to speak to the doctor about one thing thinking it won't take too long and then something else comes up and it takes twice as long. I will remember the double appointment thing though for future reference though thank you.

[ramboself]

i'd be interested in the rethink leaflet on reasonable adjustments, my gp regularly makes me wait an hour though i've booked the 1st appt of the afternoon 2 wewks in advance, whether as a inner city gp he'd listen, one advocate wrote to him saying it's rediculous expecting someone with severe social anxiety to wait an hour in a crowded surgery

I thought of changing gps but i had enough trouble getting him and he has dealt with psychiatrists letters which may help with benefits, they closed my case 3 yrs ago

[Admin - Rethink]

Here's our page & guides on reasonable adjustments:

http://www.rethink.o..._adjustmen.html

[ramboself]

There doesn't seem to be anything to give my gp, remember my attempt at work before the disability discrimination act, i now feel i was persecuted by the benefit system and social services for having tryed, nowadays i'd be frightened to muddy the water

Remember asking to be made redundant with a non prejudical reference, under disability law the only way they could get rid of me was to send me home sick, it's illegal to sack if your under quota, so i got sent home sick

[Invisible]

Well it seems that my initial post has been hijacked.

Guess the hijacked subject makes more sense then my ramblings. Never-mind. I have an appointment tomorrow with the dentist and then the weekend is all mine to do what I wish. Maybe nobody wants to say it, but people on here reckon I am a f****d too.

[scottg]

Hi invisible sorry things havent improved for you despite you trying so hard. I am not trying to challenge you on why you cant or wont take certain meds but would ask you to investigate the possible use of amisulpiride as after many years of multiple voices and images of a very dark and horrible nature, a doctor persuaded my wife to try them, and within a day of so they disappeared. It has made such a huge difference to her life.
I managed to find one of your youtube videos about voice-hearers and was profoundly moved by your honesty, humanity and humility. You mentioned stigma being perpetuated in the media, which got me thinking and yesterday in the first 20 minutes of This Morning were 2 blatent examples of this, the worst one talked about a vicious assault on a postman in which the attacker battered him round the head with a rock, then tried gouging his eyes out, when the postman managed to get the rock off him and shouted at him he acted strangely and went, the police officer said so we think he probably has learning difficulties or is mentally ill - nice eh?
I strongly doubt if anyone on this forum think badly of you and if they did then that would just be a reflection of their ignorance.
I really hope you keep finding the strenth to carry on as the world is a better and more enlightened place for understanding and decent people like yourself - I know I dont know you as such but thats my opinion for what its worth. All the best - Scott