Wired

Topics: Someone who has experienced mental illness, Health professionals, Medication and therapies

There is a quote from a former President of the United States of America which reads "Mental illness is nothing to be ashamed of, but stigma and bias shame us all." This is food for thought in our daily lives and relationships with family, friends, strangers and colleagues. As this is my first blog, I'll give you an overview of my experience with mental illness.

Four months ago I had a complete breakdown and a Doctor told me he thought I might be Bipolar. I knew in myself that something was very different about this particular 'phase.' I had come off antidepressants in December of last year and since then my moods had started cycling more dramatically and more rapidly than ever before. I was very mixed up emotionally, I could laugh hysterically whilst feeling like I wanted to crawl into a hole in the Earth and I could sit and cry for hours whilst actually feeling quite well and very creative. I began to see coincidences everywhere and meaning in everything. I felt like the pain of the world was on my shoulders.

I had to go on longterm sick from the job that was smothering me and wait a very long time to be seen, eventually, by a psychiatrist. My perception of Bipolar Disorder, despite all my experience of mental illness, was incorrect. I thought 'I don't hallucinate, I don't believe I could win an Oscar next week and a Pulitzer Prize the next, I can't possibly be Bipolar...' What I didn't know, is that there are variations of the illness, different degrees and a state known as 'hypomania' as opposed to full blown 'mania.' I now take Depakote, a mood stabiliser, and Seroquel, an anti-psychotic which is believed to help with depression/anxiety, twice a day. After 5 weeks on medication I am now feeling much, much better. I can wash my hair without crying at the effort of combing it afterwards. I don't cry for days on end. I don't feel pressured to write pages and pages of thoughts. On anti-depressants, I always felt apathetic. Like a functioning robot without a personality, plodding through the nine to five like a Stepford Wife. Now, I feel my old interests coming back. This is not to say that I am against anti-depressants; it is to say that Bipolar disorder can be misdiagnosed and that antidepressants may not be the answer.
 
Although this year has brought me to hell on Earth and back, I am also thankful for some of the things it has taught me. I have learnt more about other relatives than I ever knew, that many of them have had variations of my illness without me knowing. I have become closer to the good people in my life and, unfortunately, have drifted from those who now avoid me, whether from fear of the unknown or embarrassment of association. Mental illness is a litmus test for those around you. I have also experienced the spectrum of the mental health system. I have seen the very good (Doctor's who make time to see you out of hours and listen intentively) and the very bad (Psychiatrists not responding to Doctor's referrals and Community Psychiatric Nurses advising Prozac and calling me by another patients name on several occasions.)
 
What I have come to understand the most about mental illness, is how much we who 'suffer' are supposed to know about it. When an impatient nurse called me to advise me an 'appointment with a CPN had been made for me by the PCT' I had to google the terminology. Another example is a friend of mine who recently had a baby and was in extreme emotional distress. She attended her GP to discuss how she was feeling and left with a box of Prozac. Two weeks later she was still felling very bad and called the GP back. When she asked the Dr 'I just want to know what's wrong with me...' she received the answer 'Oh, you have post-natal depression, I thought you knew that.' But she didn't; how could she? This is her first experience of being post pregnant and the term was never mentioned in her appointment.
 
The worst thing about my disorder (and I do prefer the terminology 'my quirk') is that there is no consensus as yet between the medical profession as to what works and what doesn't. Whereas one Doctor will tell you to supplement mood stabilisers with an antidepressant, another will tell you to avoid them like the plague itself. This lack of agreement is then amplified by the horror stories available to us online. Unfortunately, it seems, only those with negative experiences put finger to keypad and so we self-diagnose and prophesise our actions and reactions. I began Depakote with the belief that it a) wouldn't work and b) I would be 32 stone and bald within weeks.
 
I am happy to report I still have a full head of hair and am still a normal weight, both of which have benefited from my ability to shampoo and eat following successful treatment.
 
My advice, to anyone with a mental illness, is to shop around when it comes to Doctors. I don't say this lightly. The week before I attempted suicide I attended a GP and told him I felt a danger to myself and needed to see a psychiatrist urgently. His reaction? 'Hmmm, well counselling lists are very long, lets try some more tablets first.' These were the tablets I overdosed on. Since changing doctor I no longer feel anxious when I make an appointment, I don't leave feeling confused or uninformed and I am comfortable being honest with them about my thoughts and behaviour. Just as there are bad plumbers there are less than ideal Doctors. We shop around for plumbing quotes, so why not for the person who helps you stay alive?

Comments

Please note: Rethink accepts no responsiblity for the content of comments in the blog.
1. At 09:36 PM on 19 October 2010 Ruth wrote:

-

Hi Sarah, I enjoy reading your writing.
2. At 01:34 PM on 29 August 2009 Karen L. Tidswell wrote:

Perception of weakness

I have Bi-Polar Affective Disorder, I was diagnosed when I was 25. There were a lot of things which bothered me about being mentally ill and one of those was the fact that I felt it was a sign of weakness within my character. The contradiction was that although I could not pull myself out of my periods of depression nor could I stop myself from being manic. nobody wants to be unhappy, however I could not reason that being too happy was a sign of weakness as happiness is surely a good thing?I felt lost and confussed about how my life had been, the emotional turmoil and the fact that nobody had viewed me as mentally ill, just Karen - up and down but only ever fleetly inbetween. I had an idylic childhood and adolecence. No big stresses i'e. my parents were hapily married and loved us dearly and there were no family drama's. I though, was easily upset and always worried about something. I visited my psychiatrist one day and I told him I was unhappy with the fact that I do not cope with stress very well and that other 'normal' people coped much better. He said to me that there is no point on focusing on what we are not good at and should focus more on what we are good at. Being well in myself I realised that I am good at a lot of things and thought to myself what a good way to look at life. I had felt irritated at myself for being weak, but now I see that we all have weaknesses including 'normal' people and I choose to concentrate on what I'm good at. We should all focus on our strenghts and kindly accept to ourselves that nobody is perfect.
3. At 07:49 PM on 11 August 2009 Sarah wrote:

My Post

I just wanted to add on, having read some of the comments online, that I have extreme difficulty in not being ashamed of my illness. The parts I am most ashamed are the parts I perceive to be weak- the social anxiety, the depressive phases, the need for medication. The President's quote certainly does sound like romantic cobblers to me when I am at a party convinced that 36 people are trying to alienate me or when I cry in front of an office of 'normal people.' It really doesn't matter who said that the stigma of mental illness shames us all, because it is true. It is true because both those of us with and without mental illness have not yet found a way to make it fiction.

Post a comment

Please include your name and your email address. Your email will not appear with the comment, but whatever name you provide will.

Comments are moderated, and will appear when Rethink approves them. Rethink cannot guarantee your blog comment will be published.

Required
Required
Required
Maximum characters 1600
 
 
If you wish to remove a comment that you posted on this blog then please email online.team@rethink.org