Janey's plain language summary blog: Catatonia

Topics: Someone who has experienced mental illness, Health professionals, Medication and therapies, Physical health, Recovery

This is my first blog so I’d better explain what I am doing.  I read the Cochrane review (carefully) and then write a plain language summary for it.  Read the plain English summary relating to this blog.  have been lucky enough to go on the four day course that the Cochrane Schizophrenia Group runs to teach people how to write Cochrane reviews.  It was quite detailed and we learned how to identify relevant clinical trials from everything that has been published in the world.  We also learned what good data was and how to do the statistics. 

Doing this review taught me a lot.  I’ve had catatonia and also seen someone else with it on the ward once, and we both remained in one position for a long time.  Both she and I came out of it spontaneously and I thought that was what always happened. 

It turns out that some people can be in a catatonic state for a much longer time and can have repetitive movement problems rather than just no movement. These people are much more likely to put their health in danger as they can get malnutrition or dehydration, also pneumonia. It must be heart breaking for the reviewers to have done all the work for this review only to find that there is no good data.  But there are still trials that are not complete so there is data coming... watch this space!  

 

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