Ebony's blog

I also noticed that I was given an out-patient appointment instead of my Enhanced Care Plan review and as my CPN is also my care coordinator I have no one to discuss it with. It just seems to be a management decision and has nothing to do with me? How can this have happened? I asked my nurse at the Depot clinic to speak to the team for me and she rang me a few days later to say that the manager would look at my case notes. Surely this should be a clinical decision to change my CPA from enhanced to out-patient?

Every time something like this happens it sets back my faith in the services I'm being provided with. I feel like a pawn in a game. I'm not sure that I can cope as an out-patient back on tablets I get confused and relapse if I'm left to my own devices. My support services depend on my care plan will they disappear if I'm an out-patient ? Does this mean I'm too expensive to support? Is it a financial decision rather than a medical one? I have not been informed of any change officially it just sort of happened .

I know that there is also a new psychiatrist again they change every six months and without my care coordinator to explain my case I'm lost. There is no continuity of care and I feel I have had my status changed without any say in the matter.I'm angry and fed up with the system . Apart from that everything is great.

I'm standing for election to the Trust's council of members, I hope to be able to change how they operate from the inside. To become a voice of the service user at board level. I feel that there needs to be more clarity and consistency across the Trust. The sister team to mine in the North of the borough has best practice when it come to how they treat their patients . They don’t send letters out stopping CPN's because of staff sickness. With the North the Patients come first they even keep the same psychiatrists for years whereas the South change them every 6 months. Why are there such differences in attitudes between mental Health teams in the same Trust? This is something I intend to find out If I 'm lucky enough to be elected to the board.