A Carer’s Diary – Episode 7

Topics: Carers, Family and friends, Social issues

Harriet is chaotic and restless. This is the bad time – the danger time. I hide sharp objects, she improvises others to take their place. And if she is one thing above all others, then she is endlessly ingenious where means to harm herself are concerned.

She paces the living room floor interminably. She sits at her desk and quietly weeps. She sits on the sofa and quietly weeps.  ‘I need a distraction,’ she pleads.   ‘Like what?’ I ask.
  ‘I don’t know. You need to choose. To plan it, to organize it, to get me there. I’m too bad to think about arranging anything.’

And so, I run gamely through the options. She often finds the journey, a journey, any journey, a curiously welcome balm when she is like this. Not the being anywhere in particular, just the getting there. The chance to sit and admire a different landscape, to allow a new scene, a changed perspective, to wash soothingly around her. It’s a fleeting distraction, no less, no more – but a welcome one. And so, we consider a ride to Banbury. To Nottingham. To Rugby. To Oswestry. Anywhere on the bus route will do.

The next day she is ready. We are going to Market Harborough. The ride is relatively short, but she wishes to do a bit of toy shopping for the parrot.
  ‘And we could sit somewhere nice and have a coffee.’

She does well with the bookshop. We kill a pleasant twenty minutes in there. But stepping back into the rapidly filling street, she immediately seems fazed and leads us off down a blind alley.
  ‘I don’t know why I went down there,’ she whispers, before recovering her sense of direction – if not purpose – and making falteringly for the shop with the parrot toys. The store is narrow-aisled and bustling, but Harriet successfully chooses the bits she needs and moves with me to the tills. A moment or two of static queuing, and she is ready for off again.
  ‘You pay,’ she says, ‘I’ll go and wait by Sainsbury’s.’

But when I get to Sainsbury’s she is nowhere to be seen. I step into the store itself. Search around the sandwich area, move deeper inside to check the first few aisles of the store proper – still no sign. And so I re-trace my steps and walk back over the river into town. She is nowhere to be found, so I head back again to Sainsbury’s to see if I’ve missed her, and finally I discover her on a bench, slumped and dazed and miserable. We chat a while, share a bottle of water, and she is eventually up to going into the store to choose a few groceries.

The first few aisles are busy, and the store is unfamiliar. We don’t know where to find a thing. Harriet is mumbling and whispering, her anxiety levels rising with every confused second among all these jostling, chattering people.
  ‘I need the fresh meat,’ she pleads. ‘Where is it?’
  ‘I don’t know,’ I answer, ‘I’m as lost as you.’

We continue to wander aimlessly for a while, never any closer to finding the items she seeks, though by now she has at least managed to chuck a carton of soup and a few token bits of fruit and veg into the basket … and then suddenly, without any apparent warning, she is off, quite literally running towards the main door. She barges into couples, into agitated lunchtime meanderers, as she goes, but never once looks back as they cluck and mutter at her clattering exit.

I ponder whether to chase after her or go and pay for the shopping. I dash to the nearest till and pay for the few bits, before charging off to find her. Again, she is not by the doors. I search the car park and the entrance area: no sign. I walk again, back over the river into town, glancing down the side-streets and the into shadowy alcoves: nothing. Finally, I discover her lying in a heap of blank dejection on the lower part of the grassy riverbank. People are peering curiously down at her. I rush over to help her to her feet. She is confused, dazed, miserable.
  ‘Let’s get you to the bus stop, honey,’ I soothe. She is ill and uncommunicative. At the shelter she is restless throughout the short wait. She stands up on the bench and will not come down, until finally, she jumps to the floor, landing hard and painfully.

Back home, after rest and a snack, she asks for her Swiss Army knife, which I have previously hidden. ‘I need to whittle these bits for the parrot.’ Later, she sensibly returns it to me.
  ‘You’d better take it,’ she says.
  ‘Not up to trusting yourself yet?’
  ‘No. No way.’ 

Comments

Please note: Rethink accepts no responsiblity for the content of comments in the blog.
1. At 09:25 PM on 17 September 2009 mariana wrote:

from far away

Hello David :) Today I went to the Rethink website and red your episode with Harriet, and believe me. You are a fighter as she is too. I am from Portugal, and I just join the website 2 days ago and I am already touched by some stories that I have seen here. I hope good days will come as her trust in her self too. Hug from M.
2. At 10:21 PM on 19 July 2009 Mary wrote:

grateful

Dear David Thank you for your blog. I've been so touched by it. Harriet is very lucky to have someone to love and care for her as you do. You are clearly a very special person and are doing a fantastic job with patience and good humour, not only of caring for Harriet but also of encouraging others, like me, to cope with our own situations. Wishing you all the strength you need in the difficult times and hoping you also are able to have many good times.
3. At 10:15 AM on 19 June 2009 Laura wrote:

So Familiar

Dear David, It was great to read you blog. It is a brilliant account of what it can be like to be with someone you care about in a situation like this. So many of the things you describe remind me of what it is like to take my brother to town when he is feeling unwell. I always feel so anxious – what will happen, how will I protect him, will he leave me etc – but I try to hide this, be relaxed, calm, in control and positive. I really think that it is impossible for some people to imagine what it is like, not just the practical elements but also the emotional side. I wish more health professionals could read accounts like yours. Thank you for writing this. I am glad that your partner has someone to care for her as much as you do and with so much honesty. Laura
4. At 04:20 PM on 13 June 2009 Emma wrote:

step at a time

sounds as if harriet has been rather upset. sometimes i get upset like this and it used to be as extreme as this on a few occasions. have you ever thought about some sort of talking therapy for harriet. sounds as if she could do with a good patient friend someone who will just be there for her and do things with her even just to go a walk or for a coffee someone who wont put any pressure on her and let her talk as she pleases. it may help if she would try and write down anything she wishes to she if you can make anything of it even if its just words about how she feels. or any words something she enjoys or just anything randomly to see where it leads. i find this helpful it helps you to become more self aware and make choices by reading it back to yourself. as with self harming the best thing that works for me is rubbing ice on my arms it gives me a feeling of release when i feel desperate when i just cant get the words out. self harming is only a sort term solution which is no real solution at all you need to get at the route of the problem and that is by doing this the way she feels comfortable with taking it as slow as she wants to go. you are in my prayers . no one has all the answers just hope this helps.

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