My brother loves to work.

Topics: Siblings, Family and friends, Work and money, Stigma and discrimination
He hasn’t always been well enough to work, but when he is he really loves it.

He says working helps him feel like he’s not a burden (though none of us feel he is one). He wants to be able to help him and his girlfriend’s finances and it helps his self-confidence and self esteem no end. Otherwise when he’s well and stuck at home, he’s bored out of his mind and the negative symptoms get worse.

He likes working so much that when he is in work, he often gets up at 5am so he can arrive really early for work, gather his thoughts, and get ready to focus straight for 8 hours or more.

I’ve often been round his house at night when he’s been pacing around getting organized for work the next day - setting his alarm and going to bed early – while I stay up chatting with his girlfriend, get trashed and have to face work on a major hangover the next day figuring if I’m at half pace that’s okay.

But that wouldn’t be good enough for my brother – he feels so lucky to be working that he wants to do the absolute best job possible.

Recently he’s felt ready to work again, and has started looking around and applying for jobs - but this time it’s different.

This time he’s declaring his diagnosis.

He’s chosen to do this because he worries what will happen if an employer finds out later and sacks him for non-disclosure. He says he’ll feel more secure and confident if he’s upfront about it and they employ him anyway.

I’m really proud of him for being so brave – I called him this week and he was sitting on the sofa feeling miserable but he was still going to go online and look for jobs to apply for. So even in the midst of anxiety and lack of confidence, he’s doing proactive stuff to help himself find that job he wants so much.

But bravery isn’t always rewarded.

And I’m getting angrier and angrier because, guess what, he’s not getting very far – not through lack of effort but because of pure and simple discrimination – even though it’s against the law.

I could tell you about what’s happened with a couple of his applications that has made me almost incandescent with rage, but I don’t want him to worry if he read this that he might be identified by the stories.

All he needs is a break. Just one person in one organization who’s prepared to take the chance and in return get someone who will be dedicated to their job and really delighted to be there. And who will be more than capable of getting the job done.

Just one person to see past a diagnosis to the person behind it.

I know I’m not telling you anything you don’t already know. And I’m not surprised this is happening. It’s just that right now it breaks my heart when I ring him up and he tells me how miserable he’s feeling because no-one will give him a chance at the moment. Because as his big sister, I just want to make it alright for him.

I tell him not to give up hope, that if he makes enough applications and does some voluntary work that someone, somewhere will give him that break – it’s just a matter of time.

And I’m sure I’m right.

It just seems so wrong that someone who’s shown such bravery in dealing with his illness and who is more than capable of doing the jobs he’s applied for, should now have to try a hundred times harder than other people – just because of stigma and ignorance among employers.

Talk about a double whammy.

Comments

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1. At 07:51 PM on 08 May 2008 Mez wrote:

How can I support my brother?

My brother was diagnosed with schizophrenia in 2002 and has since been out of work. Although he still finds daily life very difficult due to constantly hearing voices, he has been amazingly brave and positive. After months and months of trying, he has finally found an employer willing to take him on for a trial. He has been very open about his position. Although he has been a great deal better in recent months, just this week he has had a bad episode (I think due to substance misuse). I have spent time talking through things with him to try and calm him down, but I don't think he accepts that he needs to stay off drink/drugs etc and am concerned that this will affect his chances of keeping the job. Does anyone have any tips for how to support him (apart from the obvious of just talking things through with him)? Many thanks.
2. At 05:37 PM on 21 February 2008 Phil wrote:

Employment

I began my first post after my initial illness with Rethink or NSF as it was then. It was a part of my road to recovery and although scary at the time my confidence grew. I used to be a nurse working in a profession that should have understood recovery was possible. However, my diagnosis gave me periods of hospitalisation, unemployment and rejection and my journey began when I thought - NO I am not having this, I can and will return to work. To cut a long story short my journey took 7 years, I had to live with my parents as on benefits. If I had been given support and confidence in the early days I could have saved the health service thousands of pounds as would not have required recurrent periods as an inpatient. I too initially lied on application forms and then thought - NO - why should I, if I had heart disease or asthma it wouldn't effect employment. However, I chose to work in mental health as knew my own experiences would benefit others. Rethink gave me my opportunity and I worked on a helpline and support house. My current job which is full time is unique in that you had to have lived experience of ill health to apply. I work in self-management approaches of longterm health conditions and designed a mental health specific course. I can talk openly as a speaker at a conference and think now it is your time to listen to me. When I first began work I remember being stuck in rush hour traffic and enjoyed it as I had not been allowed to do it for many years. It does astonish me that perceived problems such as rejection, unemployment continue. Stigma must end!
3. At 11:17 AM on 19 February 2008 RED wrote:

'Coming Clean' on Application Forms

Hi, wanted to say how pleased I am to read your brother understands the benefits of employment: unfortunately many of those experiencing poor mental health do not appreciate how key this is to Recovery. If I could offer a little advice it would be this: firstly, link with a Rethink employment service if one is nearby; or, if not nearby then ring and get some support and guidance. Secondly, your brother may be being too forthright with information. While I understand he is keen to provide all the information, I think the timing is also important. Often the Application Form asks 'Do you consider yourself disabled?' obviously the keyword here being 'consider' many people experiencing mental health problems do NOT consider themselves disabled. Therefore it may be an idea to tick 'NO'. If successful and shortlisted and interviewed, it is at the point when the interviewer asks 'Have you any Questions?' that your brother may declare his state of health. He can provide information and how he manages it; if it affects his work or not; if he needs support or not; importantly at this point the interviewers have met the person, seen the personality, liked the answers etc. They're not responding to a tick box refering to Disability. Certainly there is no guarantee of success but it gets you into that interview room; it de-stigmatizes mental health and lets the person present themselves. It's an idea and one I know has succeeded. Wish your brother all the best and Good Luck for his job hunting.
4. At 11:41 AM on 07 January 2008 Orla Roberts wrote:

employment

Hello Mary I've read 2 of your blogs. Re employment for siblings with mental health problems. If your brother is putting this on his cv this is a positive step forward for him and everyone else. You could say he is being a pioneer because we know there is discrimination in the workplace and mental health is probably the last taboo. So he will have to just have to keep on applying and accepting rejection until the right employer is lucky enough to employ him. On the other hand many, many students with top class degrees, not declaring any obvious mental health problems, are sending off 100s of applications and only getting a couple of reponses, or none. So it's important to be positive and not see every rejection as evidence of discrimination.
5. At 11:35 AM on 18 December 2007 Paddy wrote:

Don't give up

Hi Mary I would first off all like to say what a great big sister you are and I am sure your brother appreciates you very much. You mentioned doing some voluntary work and I would like to say how useful it was for me in getting paid employment, it firstly rebuilt my confidence and gave me a purpose in life I was able to gain new and retrain old skills. After my mental break down I struggled to do what appeared to be the most simple of tasks, go out the house, answer the phone, speak to people. With help from my family, health teams and the people at the Rethink service I volunteered for I managed to blossom and was successful in getting paid employment. It was a long road to this with many ups and downs but I have been service user, volunteer and now paid employee for Rethink.
6. At 12:57 AM on 18 December 2007 jane wrote:

Brothers courage and honesty

Mary firstly you are a great caring wonderful sister - but rare!!!! A lot of people's family do not understand mental health issues nor want to. Sadly the same stigma is there from employers too. Thinking 'oh mental health issues means days / weeks out of work,' etc etc when in fact many mentally ill love to work, be part of society,be useful, an asset to the world rather than burden...... if someone stops you and says 'oh I have had cancer' the automatic reaction is 'wow we are sorry take care of yourself.......' Say to someone "I'm mentally ill" and their expression changes, and they become fearful.......Such a shame mentally illness is still considered to be a taboo and all mentally ill are in peoples mind " uncontrollable people not taking medicine, threatening / dangerous to others.. Which is not always case!!!
7. At 07:08 PM on 13 December 2007 Chelsea M wrote:

Sorry

Discrimination in this world, is very horrible. I am so sorry to hear what is going on with your brother. I have a little brother as well and he has a stuttering problem, people make fun of him, and teachers get impatient with him.. it is horrible to just sit back and wish you could do something. Even though you don't know what, and know that you can yell and scream but it won't make a difference. People are just so focused in their own life and are so used to "normal" people that someone who is different isn't right in their eyes. Like I said it isn't as bad as what your brother is going through.. but I can feel your pain. Maybe not as much but I can. I hope everything works out. And wish your brother good luck for me. Chelsea M

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